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According to the organisation, it has developed and holds the largest database in the world of CFS patients and their accompanying pathologies based on over 23 years experience with these groups. | According to the organisation, it has developed and holds the largest database in the world of CFS patients and their accompanying pathologies based on over 23 years experience with these groups. | ||
==External links== | ====External links==== | ||
* [http://www.nightingale.ca Official site] | * [http://www.nightingale.ca Official site] | ||
===Some ME Literature=== | |||
* M. Hooper (2007), "Myalgic encephalomyelitis: a review with emphasis on key findings in biomedical research", Journal of Clinical Pathology 2007;60:466-471 | |||
''This review examines research findings in patients with myalgic encephalomyelitis in light of the current debate about this chronic multiple-symptom, multiorgan, multisystem illness and the conflicting views in medicine. These issues cannot be separated from the political opinions and assertions that conflict with science and medicine, and will be part of this review as they have enormous consequences for scientific and medical research, patients, clinicians, carers and policy makers.'' | |||
* Marshall EP, Williams M, Hooper M (2001), "What is ME? What is CFS? Information for clinicians and lawyers", Engeland | |||
* WAMES (2004), "ME & CFS: A Report for the Welsh Assembly Government", Welsh Association of ME & CFS Support (WAMES), February 2004 | |||
''The WHO has recently reaffirmed its classification of ME and CFS as 2 separate conditions with ME as a neurological illness and CFS as a mental health problem.'' | |||
''One of the problems that patients have with the term CFS is that it highlights only the fatigueelement which is just one of the main symptoms. This fatigue is also often misunderstood as littlemore than extreme tiredness. The umbrella term ME/CFS and latterly CFS/ME has been adopted by some to denote a spectrum of disorders with a fatigue element, not necessarily all of physical origin.'' | |||
<!--the above quote Hyde--> | |||
* Chaudhuri A (2002), "Chronic fatigue syndrome and myalgic encephalomyelitis", Lancet, 2002 May 11;359(9318):1698-9 | |||
===ME quotes=== | |||
"There are now over 4,000 published studies that show underlying biomedical abnormalities in patients with this illness. It's not an illness that people can simply imagine that they have and it's not a psychological illness. In my view, that debate, which has waged for 20 years, should now be over." | |||
Professor Anthony Komaroff, Harvard Medical School: Speaking at the USA Government CDC (Centers for Disease Control and Prevention) press conference on 3 November 2006.[www.cdc.gov/od/oc/media/transcripts/t061103.htm] | |||
<!--[[Category:Medical and health organizations]]--> | <!--[[Category:Medical and health organizations]]--> | ||
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Nightingale Research foundation
[1] The Nightingale Research foundation is a Canadian organisation for people suffering from chronic fatigue syndrome. It was founded by Dr Byron M. Hyde in 1984. It subscribes to the views of its founder that "chronic fatigue syndrome" and "myalgic encephalomyelitis" are distinct diagnoses rather than two names for the same condition.
The Nightingale Foundation has made several contributions to the care and well being of patients with CFS. It does this primarily been through representation of patients in the legal sphere rather than by conducting and publishing research in medical journals.
According to the organisation, it has developed and holds the largest database in the world of CFS patients and their accompanying pathologies based on over 23 years experience with these groups.
External links
Some ME Literature
- M. Hooper (2007), "Myalgic encephalomyelitis: a review with emphasis on key findings in biomedical research", Journal of Clinical Pathology 2007;60:466-471
This review examines research findings in patients with myalgic encephalomyelitis in light of the current debate about this chronic multiple-symptom, multiorgan, multisystem illness and the conflicting views in medicine. These issues cannot be separated from the political opinions and assertions that conflict with science and medicine, and will be part of this review as they have enormous consequences for scientific and medical research, patients, clinicians, carers and policy makers.
- Marshall EP, Williams M, Hooper M (2001), "What is ME? What is CFS? Information for clinicians and lawyers", Engeland
- WAMES (2004), "ME & CFS: A Report for the Welsh Assembly Government", Welsh Association of ME & CFS Support (WAMES), February 2004
The WHO has recently reaffirmed its classification of ME and CFS as 2 separate conditions with ME as a neurological illness and CFS as a mental health problem. One of the problems that patients have with the term CFS is that it highlights only the fatigueelement which is just one of the main symptoms. This fatigue is also often misunderstood as littlemore than extreme tiredness. The umbrella term ME/CFS and latterly CFS/ME has been adopted by some to denote a spectrum of disorders with a fatigue element, not necessarily all of physical origin.
- Chaudhuri A (2002), "Chronic fatigue syndrome and myalgic encephalomyelitis", Lancet, 2002 May 11;359(9318):1698-9
ME quotes
"There are now over 4,000 published studies that show underlying biomedical abnormalities in patients with this illness. It's not an illness that people can simply imagine that they have and it's not a psychological illness. In my view, that debate, which has waged for 20 years, should now be over."
Professor Anthony Komaroff, Harvard Medical School: Speaking at the USA Government CDC (Centers for Disease Control and Prevention) press conference on 3 November 2006.[www.cdc.gov/od/oc/media/transcripts/t061103.htm]